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INNODIA goes all in on communication!

20. November 2018

With recruitment going at full speed and all of the centres active, this year’s meeting wanted to focus on the topic of retainment. How do we make sure participants stay motivated and continue with the study, instead of withdrawing? What can the clinical centres do to keep the participants, often children and teenagers, engaged? Is there anything nurses and clinicians can do to make participation as easy as possible? These questions were being addressed during the sample recruitment meeting, led by Dr Sylvaine Bruggraber, on Monday morning. During this meeting, members of the Patient Advisory Committee were also present to give their much-appreciated feedback.

The reasons why participants could possibly withdraw from the INNODIA project were identified and categorized into 3 main groups: the time it takes to particpate, change of circumstances, and motivational change. The delegates at the meeting were divided into small groups, where they could discuss these problems and come up with possible solutions. Some of the ideas suggested were simple but effective, such as making the appointments for the study during school holidays, sending a reminder when the participant has to do a test at home, or giving little gifts to the participants to show our appreciation. The last one was already ongoing thanks to Dr Sylvaine Bruggraber! Others were not as easy to implement such as the creation of an app, newsletter, and multi-language website, but because of the enthusiastic reactions of the Patient Advisor Committee members and nurses, INNODIA will surely see what is feasible here. For example, different newsletters for patients, nurses, and researchers will be made in close collaboration with the Patient Advisory Committee and the multi-language website is also on the agenda! Keeping participants informed about the study and giving feedback about their results is something that can definitely boost their motivation!

All in all it is safe to say that INNODIA will focus more on communication in the future, especially towards the backbone of this study, our participants.